Archive for the ‘Uncategorized’ Category

Your story

April 29, 2019

Share your story here:

Your story is brought to mind by looking at the keyboard

Made alive by typing

Your story, and mine

Is the talking and calling and writing we do

Make sure it is your own


Sad story

April 29, 2019

Sad story

Return to sender

No postage due


April 29, 2019

Name here:________

Nameless here:_______

Named here_______



April 29, 2019

To be flawless is not to be perfect

To be perfect is to be oneself

Not a conformist at core

Make your heart pound with participation

Being still is no sin

Living is the great gift

The only gift


December 7, 2018

I’m tired of these walls made out of air earth and sand, of things that change before my eyes with such indifference and with no need

I tire of the same story playing out over and again, self limiting superstitions half believed and at most half followed

I am bored with the boorish, the indifferent and the sometimes friend, humanity can fascinate itself if it but tries

Morality is mistaken for morel and ethics and conformity, good behavior is mistaken for normal and bad behavior for immoral

Our apathy is not salvation, it is chains that we ourselves have constructed, our lives should be our fulfilling not undoing

The day of salvation is not coming to us, we ourselves are each other’s savior as we are to ourselves and must be for ourselves

Empathy is our evolution as it can be our savior from the demon of indifference


December 19, 2016

I want you to believe in love

I want you to believe

want you to practice your beliefs

make them your own

your not my child but you are a child

no matter your age

you can grow

no time of year is bleak

not the middle of winter

nor the midst of black despair

do not revel in anything all year round

joy, grief, pain, bliss, loss

all belong

do not give into old age on nature’s terms

if its not in your heart to do so

gather your family in from the cold

and stay by the hearth if its warmth you seek


July 1, 2016

awaking refreshed from my nap I find myself in the mood to set things right

what do you want to hear?

what do you want to know?

I have a few followers you know

I’m inconsistent

if this were a job they would fire me

unless I was the boss I am sure

but I get to be my own secretary, editor, proofreader

one of my own critics

its not like I need to turn out a new blog post every minute

I’ve done this before

being my own boss isn’t all about the money.






A Marriage of Sickness and Health

March 10, 2016


Dear future partner,

We haven’t met yet, or maybe we have and time wasn’t ready.
We need to talk. Now. Before I fall in love with you, before you fall in love with me.

Because I don’t want my disease to cause you to leave me.

Too often I see sad posts in online support communities for severe disease groups. Like this one:

“My spouse just asked for a divorce after 25 years of marriage. She said she could no longer handle being married to my condition. I work full time, I do chores, I am a great partner and parent. I just can’t hide when I’m having such bad pain. I feel so alone. Can someone share how they got through this? How can I be in another relationship if I know my disease could cause someone to leave?”

These posts wrench my stomach. I cry, “Another one?” And I have two reactions: hope and fear.  

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An open letter to healthy people from a former healthy person

September 3, 2015


Dear healthy people,

Let me tell you about becoming a “sickbody.” I have Ankylosing Spondylitis. Right, just don’t even try to pronounce that. We’ll stick with calling it A.S., yeah? Really all you need to know about it for this blog post is that it’s a chronic autoimmune disease. I’ll share a link at the end for you to read more about it. (Here’s a distracting picture of me to help you along)

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These carbon-hungry blobs could help fix our oceans

August 5, 2015


Hey, beachgoers: Have you ever ventured into the ocean on a steaming hot day, eager to splash around in the cold waves, and found yourself entirely surrounded by a bunch of translucent gooey blobs? Have no fear – you’re probably not being swarmed by tiny jellyfish or swimming in the remnants of a sea turtle’s messy meal.

In fact, you most likely found some harmless salps, which are washing up along the coastal United States, National Geographic reports. Salps are barrel-shaped ocean invertebrates that belong to a group called tunicates, and they also feel extremely gross against your legs.

But you’ll just have to deal with that squishy sensation, because salps are also tiny climate-change fighters! National Geographic has the details:

Salps’ cloning tendencies also let them take advantage of algae blooms. The animals gorge themselves on the algae and pump out chains of salp babies. All that eating also produces large fecal pellets that “sink…

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